rubenpants.com - a journey…

One of the inconveniences of being a newf owner is the fact that when winter hits, they want to be outside pretty much all the damned time. Not really being a fan of the white stuff myself, I take no joy in going out with her in this weather. But since we’re headed back to Spain for good at the end of May, I guess I can indulge her this winter. You go, girl.

On the Rubén front, things got pretty hairy yesterday when we upped the dosage on his TD-DMPS to eight drops (approximately 1/3 of a “full dose” for his body weight). He was hyper, stimmy, disconnected, and just plain off. We’re questioning whether this is in fact the right path for him. Dr. Timothy Ray calls this a “healing crisis,” when the side-effects of treatment are as bad or worse than the disease itself. Proponents of TD-DMPS will of course tell you that it’s normal, that it’s “just the metals moving,” and that you have to just push through it. I’m not sure I agree. There are parents who talk about having endured six months of putting their kid through this so-called stim hell, but they seem pretty confident that if they stick it out, the good stuff is bound to kick in. Again, I don’t know if I agree.

My spouse never really had a good feeling about the stuff, and only now says she only went along because I was really pushing for it. After hearing some of the latest reports from other parents, and going by what we’ve seen, I may need to retract my previous endorsement. So, right now we’re investigating other, more natural chelating agents like NDF, which don’t tax the liver or kidneys, don’t deplete the body’s mineral stores, and don’t appear to produce the stimminess that comes with the sulfhydryl chelators like DMPS. Until we decide what we’re doing, we’ve cut his dose back to the first-day amount of 3 drops. He did seem more “on” that first day. I’ll let you know how it goes.

After doing all the months of research and debate, it’s hard to admit that I may have been wrong on this one. Another fear we have is that we’re just not giving things enough time. We don’t want to be like little bumblebee parents, flitting from flower to flower in the garden of our son’s intervention, on a quest for that “magic bullet” that’ll make all this go away. My intuition tells me that this is going to be a long, hard road no matter what. When it comes to chelation, we know he needs it. And we want to commit to something, we really do. We just don’t want to commit to the wrong thing.

This entry was posted on Monday, January 24th, 2005 at 10:29 am and is filed under RANT!, Pics!. You can follow any responses to this entry through the RSS 2.0 feed. You can skip to the end and leave a response. Pinging is currently not allowed.