Comments on: Good gravy! Out of luck at the pot luck.

by: Gabrielle

Wed, 16 Feb 2005 22:18:16 +0000

Amen!! I hate labels!!!! People have preconceived notions when they know a child’s dx and have any kind of letters behind their names….I could go on and on about this topic but when people see my kid, they should see him, not his diagnosis. I believe in recovery as we grow closer, slowly every day. I would have talked up biomed just to spite that therapist…you don’t have to be rich to pursue simple vitamin supps and epsom salts (as you said). Sorry for the rant but I could go on and on…….

by: Lynn

Thu, 17 Feb 2005 01:25:26 +0000

It’s job security. Recovered kids do not need therapists. I hate the whole idea of treating a seriously sick child with any kind of “therapy” or behavior management.

by: Damosbird

Fri, 18 Feb 2005 10:57:34 +0000

Hi! I found this site by accident but I totally relate! I like most therapists, especially my ABA people, but yeah that one sounds so selfish. I am on an autism web forum where parents exchange things they’ve found that worked, and yeah some of them we couldn’t afford, but I look forward to the day we can. The people that piss me off are the doctors who think they know better than me what my child needs. My neurologist told me not to look into yeast as a culprit, but I defied him and I am so happy I did. Treating his yeast has been a major success, and though I know chelation will likely be next my son would still be a zombie if he hadn’t gotten anti-fungals. He’s still obviously PDD, but this biomedical stuff really works. Don’t listen to that therapist!

by: Tamar

Tue, 22 Feb 2005 03:09:47 +0000

That therapist would have made me barf too. I hate when professionals pigeonhole kids based on what they think they know about a diagnosis. It infuriates me. There are good ones too, however. Plenty of them. You just have to be willing to be picky. I don’t avoid the diagnosis but boy do I avoid the people who make assumptions based on that diagnosis. Every kid is different. Especially our kids.

As for the biomedical angle: I may not think it’s necessary for my own child, but I think it’s very wrong to deny it — or the knowledge of it — to anyone. Everyone should be free to make that call. See above. Every child is different. We know our own children. We should have power and information to make those crucial decisions.

by: Tamar

Tue, 22 Feb 2005 03:14:10 +0000

Oh, and I disagree, Lynn. I don’t think it’s job security. I think it’s dislike of anything that’s not officially sanctioned. I see it all the time in other medical arenas. Brilliant, promising treatments shunned by the establishment and lumped with quackery without any real examination of the treatment itself.

by: carol

Wed, 23 Feb 2005 21:36:04 +0000

i hate most therapists also…and i AM one. a lot of them are infuriating because they’ve learned one way and they hold on to that one way and don’t open their minds to other things/techniques the children may respond to. i must be honest that i never promise recovery. i cannot. i can promise trying my very best to help their child communicate and function as normally as possible. but i don’t have a magic wand, a magic spell, or a crystal ball with which to predict what any treatment or time is going to bring to each child. i believe that each and every child is unique and original in the same way every CHILD is unique and original. the difference is that typically developing children we don’t need to unlock, while as the kids i work with we do. anyway, i understand your frustration of being pigeonholed.

by: jammin janice valentine

Sun, 24 Apr 2005 12:13:28 +0000

When all you have is a hammer, everything looks like a nail.

by: janice v.

Sun, 24 Apr 2005 12:14:51 +0000

when all you have is a hammer to work with, everything looks like a nail.